Global Fistula Hub

Welcome to the Global Fistula Hub Obstetric fistula is a devastating childbirth injury that leaves women incontinent and isolated. The Global Fistula Hub features fistula related knowledge products; maps, data visualizations, open data, and upcoming industry events.  The aim of this platform is to share and spread knowledge of obstetric fistula repair and prevention - to remove the threat of fistula once and for all. Updated UN Guidance, Obstetric Fistula & Other Forms of Female Genital Fistula: Guiding Principles for Clinical Management and Programme Development, is here! UNFPA & the Campaign to End Fistula are delighted to announce the new edition of the global UN guidance, Obstetric fistula& other forms of female genital fistula: Guiding principles for clinical management and programme development. The so-called “orange manual” has long been the only authoritative, gold-standard guide to the holistic, comprehensive and “bigger picture” aspects of eliminating obstetric fistula (including programming, policy, prevention, treatment, social reintegration and more). The original (2006) version of the manual has now been updated with the latest evidence, strategies, tools and resources. The manual embodies the global/UN vision of the new way forward and paradigm shift as we move toward eradicating fistula by 2030, as per the UN General Assembly Resolution (2018 & 2020) and the UN Secretary General’s Report (2020) on intensifying efforts to end obstetric fistula within a decade. If we are to accomplish this visionary, ambitious goal, new approaches & strategies are required, based on current evidence, best practices and lessons learnt in the decade plus since the original edition of this manual was issued. Given the urgency of ending obstetric fistula as a critical step towards achieving the Sustainable Development Goals (SDGs) and realizing the promise of the Beijing Declaration and Platform for Action as well as the Programme of Action of the International Conference on Population and Development, this manual serves as a crucial resource and a guiding light on the path to achieving health, gender equality and human rights for all. Click here to access the updated UN Guidance Unpacking the Orange Manual: The Updated Guidance on Fistula Repair On September 20, 2021, UNFPA, the Campaign to End Fistula, and Direct Relief held a webinar discussing the updated Orange Manual, highlighting new paradigms in prevention, programming, and care. The webinar featured Dr. Steve Arrowsmith (Direct Relief), interviewed by Erin Anastasi (UNFPA, Campaign to End Fistula) on the updated UN guidance, followed by a brief overview of the Global Fistula Hub by Jessica White (Direct Relief). Read the article, "Innovation, Creativity Required to End Fistula Globally by 2030" on Direct Relief's Newsfeed, and access the recording of the webinar below. Click here to access the webinar Engage with the Community How to participate in and maximize your involvement. Explore Issues Explore Data Find Events Find Organizations Connect & Collaborate The Annual Fistula Repair Survey Since 2010, the Annual Fistula Repair Survey seeks to understand where obstetric fistula repairs are happening around the world. Data collected from the annual repair survey on fistula repair facility information is used to create the data visualizations on the Global Fistula Hub and is available for download in the open data portal.Not all fistula repair facilities are displayed on the “Find a Fistula Repair Facility” data visualization. To be displayed on the map, a fistula repair facility needs to perform 25 or more repairs a year, have practices in alignment with UNFPA's guiding principles, and have submitted survey data within the last 5 years. Data for all fistula repair facilities, including those that do not meet the above criteria for display, can be downloaded in the Open Data Portal. The goal of this knowledge is to improve the understanding of available services, to better direct distributions of resources, and to identify and address service gaps. Fistula_Repair_Data_for_Maps_and_Apps Fistula_Repair_Data_for_Maps_and_Apps Total Facilities Reporting (2021) Fistula_Repair_Data_for_Maps_and_Apps Fistula_Repair_Data_for_Maps_and_Apps Countries Reporting (2021) Fistula_Repair_Data_for_Maps_and_Apps Fistula_Repair_Data_for_Maps_and_Apps Total Repairs Reported (2021) To open the dashboard in full screen click here. Understand the Issues Learn more about obstetric fistula by browsing related data visualizations.  View aggregated country obstetric fistula repairs reported, read stories of women who have lived through obstetric fistula, and explore related literature that has been published in peer-reviewed journals around the world. The United Nations has encouraged Member States to contribute to efforts to end obstetric fistula, to achieve the Sustainable Development Goals by 2030 and to commit themselves to continued efforts to improve maternal and newborn health, with the aim of eliminating obstetric fistula globally within a decade. - UN 55th plenary meeting 17 December 2018 Obstetric Fistula Related Data and Resources Explore and download publicly available data related to obstetric fistula. Data is thematically organized by Sustainable Development Goals where possible, as progress in these goals is progress in the eradication of obstetric fistula. Check back often as additional datasets will be added, and suggest other datasets to be hosted! No Poverty - Sustainable Development Goal #1 Good Health and Well Being - Sustainable Development Goal #3 Quality Education - Sustainable Development Goal #4 Gender Equality - Sustainable Development Goal #5 Fistula Repair Survey Data Fistula Surgeon Resources Demographics COVID-19 Pandemic Resources Fistula Focused Events Find upcoming events focused on obstetric fistula and women's reproductive health. Connect with the Community Have an idea for a dataset, analysis, or data visualization?  Want to submit fistula repair data for your facility?  We would love to hear from you. We’re always interested in improving our services, and every comment submitted will be carefully read. Fistula Focused Nonprofit Organizations Learn more about Organizations working to eradicate fistula around the world. Fistula Foundation Resources Since 2009, the Fistula Foundation has worked to eradicate fistula by supporting facilities and surgeons that repair this debilitating condition. Fistula Foundation supports repair facilities in 22 countries throughout Africa and Asia and provides support for repairs, training, and outreach. Fistula Foundation has supported nearly 50,000 surgeries – more surgeries in more countries than any organization in the world. UNFPA Resources Since 1969, UNFPA, the sexual and reproductive health agency of the UN, has provided reproductive health programs in over 150 countries.  Organizational programs focus on many family planning and maternal health outcomes. FIGO Resources Founded in 1954, FIGO (The International Federation of Gynecology and Obstetrics) is the only organization that brings together professional societies of obstetricians and gynecologists on a global basis. With 132 member societies around the world and multiple international projects, including the FIGO Fistula Surgery Training Programme, FIGO is dedicated to the improvement of women's health and rights, to the reduction of disparities in healthcare available to women and newborns, as well as to advancing the science and the practice of obstetrics and gynecology. EngenderHealth Resources For decades, EngenderHealth has improved the lives of men, women, and families through its work in family planning, maternal health, HIV and AIDS, gender equity, and many other programs. Since 2005, EngenderHealth has been a leader in fistula prevention and treatment, including supporting over 44,300 fistula repairs in Africa and Asia. Worldwide Fistula Fund Resources Founded in 1995, the Worldwide Fistula Fund helps women who have suffered from childbirth injuries, such as fistulas, to heal, recover, and rebuild their lives. They also work to improve the safety of childbirth in Burkina Faso, Ethiopia, Niger, and Uganda. Freedom from Fistula Resources Founded in 2008, Freedom from Fistula provides free fistula repair surgeries and free maternity care to ensure safe childbirth and prevent fistulas from occurring.  The organization also trains local healthcare workers.  Freedom from Fistula is geographically focused in Sierra Leone, Malawi, and Madagascar. Hamlin Fistula Ethiopia Resources Founded in 1974, Hamlin Fistula Ethiopia is dedicated to the treatment and prevention of obstetric fistulas. The organization directs the work of the Addis Ababa Hospital, its five regional hospitals, and the Hamlin College of Midwives. Operation Fistula Resources Founded in 2008, Operation Fistula works to eradicate the threat of fistula for every woman, everywhere. They do this by supporting fistula repair facilities, harnessing technology for collaboration, and mapping and data visualizations. International Society of Obstetric Surgeon (ISOFS) Resources The International Society of Obstetric Fistula Surgeon (ISOFS) is the leading international processing body for those engaged at the forefront of the prevention, treatment, and rehabilitation of women with fistula. Women and Health Alliance International Women and Health Alliance International (WAHA) is committed to offering comprehensive health care services to impoverished communities and persons, giving priority to those who are most vulnerable - especially women and children. AMREF Health Africa Founded in 1957, AMREF began on the continent of Africa as flying doctors, bringing surgical services to remote communities using light aircraft.  AMREF focuses to strengthen the health system and train African health workers, tackling African challenges with African expertise. Direct Relief Resources Direct Relief was founded in 1948 with the mission to improve health access globally.  Direct Relief has several programs focusing on Maternal Child Health (MCH) Issues as health mothers and healthy babies are the bedrock of any community. MCH programs are supported through the collation and sharing of related data, as seen in this project, and through the supply of product, as seen with the Fistula Repair Modules. "We have to think more about sustainability on fistula care being provided by local resources rather than international inputs. Moving away from a camp model of care, where outsiders come in for repairs, towards a model where locals are providing services. In many locations, the number is going down, in other areas fistulas remain a sizeable public health issue. Targetting this requires a geographic approach, as some areas need more surgeons and more facililties, while some areas need consolidations so that fistula surgeons can remain competent and skilled despite the smaller number of patients. Because of the geographically heterogeneous nature of the problem, the global fistula map is an important tool to strategically deploy services in a time of changing need." - Dr. Steve Arrowsmith About The aim of the Global Fistula Hub is to provide a community resource that provides data and other knowledge products to remove the threat of fistula for every woman, everywhere.  The Global Fistula Hub is maintained by Direct Relief through the generosity of the Fistula Foundation. Contact Us Direct Relief 6100 Wallace Becknell Rd. Santa Barbara, CA, 93117 Phone:  (800) 676 - 1638 Email: info@DirectRelief.org

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